NOTE: The authorized use of these links is limited to informational and educational purposes only. This site is not responsible for what you do with the information on these linked sites. Always consult your physician when you find information on the internet.


Government Sites and General Aging

American Association for Retired Persons (AARP) –a nonprofit, nonpartisan association dedicated to shaping and enriching the experience of aging for its members and for all Americans.  www.aarp.org

Alliance of Retired Americans– a new and unique national organization that works to create an America that protects the health and economic security of seniors, rewards work, strengthens families and builds thriving communities.  www.retiredamericans.org

American Society on Aging–ASA’s members comprise the largest multidisciplinary national community of professionals working with and on behalf of older people.
www.asaging.org

Minnesota Department of Human Services–the results of licensing surveys for Assisted Living Home Care Provider (ALHCP) licensees are available for viewing by the public.  If you are unable to access this information with this format please call 651-201-4301 and an alternative format will be made available.  www.health.state.mn.us/divs/fpc/profinfo/cms/alhcp/alhcpsurveyresults.htm

Eldercare Rights Alliance.  ElderCare Rights Alliance offers guidance, advocacy, and education to families, community members, elders, and professionals. We offer solutions, awareness, and prevention strategies regarding elder care and safety issues. We provide confidential services for victims of elder abuse.  www.eldercarerights.org

Minnesota Board on Aging. We promote policies to the State Legislature, the Governor and State Agencies that fairly reflect the needs and interests of the older Minnesotans.  We provide objective information and promote public education on ways to meet the changing needs of Minnesota’s older population to age well and live well.  www.mnaging.org

National Council on Aging (NCOA– an association of organizations and individuals dedicated to promoting the dignity, self-determination, well-being, and continuing contributions of older persons through leadership and service, education, and advocacy.  www.ncoa.org

National Institute on Aging–leading the federal effort on aging research.  www.nia.nih.gov

Office of the Ombudsman for Older Minnesotans–an Ombudsman is an official who is designated to assist you to overcome  delay, injustice or impersonal delivery of services.  www.ombudmhmr.state.mn.us

Social Security Administration–official website.  www.ssa.gov

Senior Linkage Line– 1-800-333-2433 www.tcaging.org/findinghelp/index.html

Disease-Related Resources

Ageless Design is a resource for caregivers and professionals dealing with Alzheimer’s disease and related dementias.  www.agelessdesign.com

The Alzheimer’s Association offers information, support, and assistance on issues related to Alzheimer’s disease and dementia.  www.alz.org

Alzheimer’s Brain. This learning resource contains information for caregivers and professionals for persons with dementia and individuals who worry about memory problems.  www.alzbrain.org

The Alzheimer’s Disease Education and Referral (ADEAR) Center website will help you find current, comprehensive Alzheimer’s disease information and resources from the National Institute on Aging (NIA).  www.alzheimers.org

Alzinfo.org is a tool of the Fisher Center for Alzheimer’s Research Foundation to educate people about this devastating disease. The mission of the website is to educate, engage, and create an online community with 24 hours a day, seven days a week access to information and support via online chats, message boards, and the most comprehensive resource databases available.  www.alzinfo.org

Alzheimer’s Speaks. As with the progression of many diseases, voice can be lost. Communication as we know it evaporates. This is the very essence for which Alzheimer’s Speaks was created. To bring voice back to the disease in many formats and fashions, while encouraging, assisting and engaging those in need of tools, services, concepts and products. www.alzheimersspeaks.com

The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.  www.cancer.org

The American Diabetes Association is the nation’s leading nonprofit health organization providing diabetes research, information and advocacy. www.diabetes.org

American Health Assistance Foundation is one of America’s leading supporters of scientific and medical investigations into Alzheimer’s disease, glaucoma, macular degeneration, heart disease, and stroke. www.ahaf.org

The American Heart Association an organization who served to reduce disability and death from cardiovascular diseases and stroke.  www.americanheart.org

The American Lung Association® aims to prevent lung disease and promote lung health.  www.lungusa.org

American Parkinson’s Disease Association.  The APDA’s goal of promoting a better quality of life for the Parkinson’s community is actualized through an expanding network of information and referral centers.www.apdaparkinson.org

The Arthritis Foundation. Throughout its 50-year history, the Arthritis Foundation has experienced steady growth and has made great strides in the treatment of the many forms of arthritis.  www.arthritis.org

The Brain Injury Association works to create a better future through brain injury prevention, research, education, and advocacy. www.biausa.org

Lupus Foundation of America (LFA) is the nation’s leading nonprofit voluntary health organization dedicated to finding the causes and cure for lupus. www.lupus.org

The Muscular Dystrophy Association is a voluntary health agency dedicated to partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.www.mdausa.org

Mayo Clinic www.mayoclinic.com

National Association for Continence (NAFC) is the world’s largest and most prolific consumer advocacy organization dedicated to public education and awareness about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence. www.nafc.org

National Cancer Institute (NCI) leads a national effort to reduce the burden of cancer morbidity and mortality and ultimately to prevent the disease. www.cancer.gov

The National Chronic Care Consortium is a strategic alliance of individuals and organizations across industry segments and professions committed to chronic illness care reform, working to improve care under current market conditions. www.nccconline.org

The mission of the National Emphysema Foundation is to improve the quality of life of patients with emphysema, asthma or related lung diseases with information and education for families. The National Emphysema Foundation supports research and works with many advisors who are involved in direct patient care. www.emphysemafoundation.org

The National Headache Foundation is a nonprofit organization dedicated to the education of headache sufferers and healthcare professionals about headache causes and treatments.  www.headaches.org

The National Institute on Alcohol Abuse and Alcoholism (NIAAA) provides leadership in the national effort to reduce alcohol-related problems.  www.niaaa.hih.gov

The National Institute of Allergy and Infectious Diseases (NIAID) conducts and supports research to study the causes of allergic, immunologic, and infectious diseases, and to develop better means of preventing, diagnosing, and treating these illnesses.  www.nih.gov/about/almanac/organization/NIAID.htm

The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH). Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability.  www.nidcd.nih.gov

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports basic and clinical research.  http://www.niddk.nih.gov

The National Institute of Health website shares consumer health information about many of the diseases or health problems on which NIH conducts or supports research.
www.health.nih.gov

National Jewish Center is the only medical and research center in the U.S. devoted entirely to respiratory, allergic, and immune system diseases, including asthma, tuberculosis, emphysema, severe allergies, AIDS, cancer and autoimmune diseases such as lupus.  www.njc.org

The National Stroke Association site is a resource and support system with details on risk factors, prevention, and different treatments of stroke. www.stroke.org

United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.  www.ucp.org


Caregiver Tools

The American Academy of Hospice and Palliative Medicine (AAHPM) is an organization of physicians and other medical professionals dedicated to excellence in and advancement of palliative medicine through prevention and relief of patient and family suffering by providing education and clinical practice standards, fostering research, facilitating personal and professional development, and by public policy advocacy.   www.aahpm.org

American Red Cross care-giving programs help people develop the skills and knowledge to care for themselves and others.   www.redcross.org

Big Tree Murphy is a wonderful site for caregivers of Alzheimer’s patients. This site has good advice for caregivers on difficult issues and on how to develop a supportive living environment and lots of good words of emotional support.   www.bigtreemurphy.com

Children of Aging Parents (CAPS) is a nonprofit, charitable organization whose mission is to assist the nation’s nearly 54 million caregivers of the elderly or chronically ill with reliable information, referrals and support, and to heighten public awareness that the health of the family caregivers is essential to ensure quality care for the nation’s growing elderly population.  www.caps4caregivers.org

ElderCare Online provides information, education, and support to families caring for aging loved ones, especially those coping with Alzheimer’s Disease and related dementias. www.ec-online.net

Ethnic Elders Care Network is designed specifically for people who are currently or will be caregivers to ethnic elders with Alzheimer’s disease and related disorders. www.ethnicelderscare.net

Family Caregiver Alliance (FCA).  A public voice for caregivers.  www.caregiver.org

Friendly4Seniors.org searches the internet to find useful sites for seniors and their loved ones.  www.friendly4seniors.org

Full Circle Care focuses on helping family caregivers complete the cycle of care.
www.fullcirclecare.org

Healthfinder is a free gateway to reliable consumer health and human services information developed by the U.S. Department of Health and Human Services.
www.healthfinder.gov

H.E.L.P. is a community-funded, nonprofit information resource that assists older adults and their caring family and friends by providing information, planning and problem-solving services, on government programs and legal healthcare-related issues that especially impact older adults.  www.help4srs.org

Home Care Companions develops innovative programs and products designed to support and educate family caregivers in the U.S. and abroad.  www.homecarecompanion.com

How to Care‘s goal is to provide practical, current information on a wide range of topics written by caregivers that offer insights and advice unavailable anywhere else. www.howtocare.com

The National Alliance of Caregivers is dedicated to providing support to family caregivers of older persons and the professionals who help them and to increase public awareness of issues facing family care-giving. This site is linked with AXA Foundation Family Care Source Connection.  www.caregiving.org

National Association for Home Care and Hospice (NAHC) is the nation’s largest trade association representing the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers.  www.nahc.org

The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.  www.nfcacares.org

National Private Duty Association (NPDA) is the nation’s first association for providers of private duty home care, which includes non-medical home care services.
www.privatedutyhomecare.org

Today’s Caregiver” Magazine, for, about and by caregivers.  www.caregiver.com

Well Spouse Association. Support for spousal caregivers.  www.wellspouse.org


Resources on Funding Care

Medicare.gov- The official U.S. Government site for people with Medicare.  www.medicare.gov

Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the U.S. for people with Medicare. MRC’s website contains information about Medicare benefits, options and changes, and resources for getting involved in their consumer advocacy work. The site also contains updated information for consumers about the upcoming changes in Medicare and how those will affect their health coverage.  www.medicarerights.org


Care Management Tools

The American Academy of Home Care Physicians serves the needs of thousands of physicians and related professionals and agencies interested in improving care of patients in the home.   www.aahcp.org

The American Society of Bioethics and Humanities (ASBH) promotes the exchange of ideas and fosters scholarship, research, teaching, policy development, professional development, and collegiality among people engaged in all the endeavors related to clinical and academic bioethics and the health related humanities.  www.asbh.org

Assisted Living Federation of America (ALFA) is the largest national association exclusively dedicated to professionally operated assisted living communities for seniors.  www.alfa.org

CareScout is a good resource for information on nursing homes, assisted living facilities, and news on care-giving. CareScout has quality ratings as well.   www.carescout.com

The Last Acts website is an online community dedicated to improving end-of-life care through the sharing of ideas and solutions by professional caregivers, educators, and consumers. This site includes a resource center, updates on the campaign task force groups, news updates, reports on palliative care, family needs, service providers, education, and training.  www.rwjf.org

The National Academy of Elder Law Attorneys, Inc. is a nonprofit association which assists lawyers, bar organizations, and others who work with older clients and their families.   www.naela.org

The National Guardianship Association is to provide educational, training, and networking opportunities for guardians to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.  www.guardianship.org

SeniorScape offers a site where care managers, elder law attorneys, guardians, and other elder care professionals, facilities, and providers can meet the public in the most comprehensive of elder care resources.   www.seniorscape.com

Housing

Arthur’s Residential Care. Provides high quality care for the elderly in a distinctive and peaceful home for just six people.  Located in Roseville, Minnesota, on a beautiful 1 1/2 acre wooded lot surrounded by white pine and birch trees, Arthur’s is an executive home, custom-designed by a student of  Frank Lloyd Wright.  www.arthursresidentialcare.com

Eldercare Locator.  A public service of the U.S. Administration on Aging. The Eldercare Locator is your first step for finding local agencies, in every U.S. community, that can help older persons and their families access home and community-based services like transportation, meals, home care, and caregiver support services.  800.677.1116www.eldercare.gov/Eldercare.NET/Public/Home.aspx

Minnesota Health & Housing Alliance. Aging Services members are diverse but share a common focus on person-directed living, missions of service to their communities and choice in older adult services.  www.mhha.com